In partnership with The Vodafone New Zealand Foundation and Todd Foundation, we are in the process of developing Pēpi Ora. Pēpi Ora is an incentive-based programme for young families that rewards parents for the important contribution they make to NZ society. Once trialled and refined into an attractive, functional app; this programme has great potential.
The Uawa Health Centre and Tolaga Bay Area School have co-designed a modified information sharing and delivery process with support from the TDHB to improve the 2017/18 HPV vaccination programme. It aims to improve information sharing and increase uptake of the vaccination, especially by males. Vaccinations were as offered at school and included education sessions with males led by males (a GP and science teacher). An evaluative case study of this successful initiative was recently completed, with funding support from Cancer Society Central Districts and the J R McKenzie Trust to critically reflect on what worked well and to share learnings.
The Huringa Pai (‘positive change’) movement was born out of Ngāti Porou Hauora during 2015 when Puhi Kaiti Health Centre staff, patients and whānau decided to team up to tackle diabetes and heart disease. Initially with zero-budget, this community-led movement has grown exponentially to empower whānau to ‘move more’, eat and grow healthier kai (food). In 2017 the community took full ownership, forming the Huringa Pai Charitable Trust. With funding support from the JR McKenzie Trust and Hawkes Bay Medical Research Foundation, an evaluative case study has now been completed to share the journey, learnings and success of this initiative and to inform further developments.
In response to high rates of SUDI (sudden unexplained infant deaths occurring while sleeping) in Māori children, the Nukutere Weavers’ Collective in Tairawhiti developed the Wahakura in 2006, the country’s first Māori safe-sleeping device. Research led by Dr Tipene-Leach, a NPH GP during the development of Wahakura, has since endorsed this cultural device to keep baby safe. The NPH Nati and Healthy programme continues to support Wahakura workshops as an effective way to engage expectant mums and pass on a range of antenatal messages.
The ‘Fructose in Schools Study’ works with secondary school science students, their teachers and whānau to explore how fructose (the most dangerous sugar in our diet) is absorbed by different people in different ways, and the effect this has on body weight and health. With University of Otago and University of Auckland members of the Maurice Wilkins Centre for Molecular Biodiscovery, and Health Research Council funding, this study is an opportunity for local tauira (students) to engage with research as a potential career whilst learning about their bodies and their health.
This study, funded by the Health Research Council with the University of Auckland, University of Otago and some Maurice Wilkins Centre researchers focuses on better understanding the impact that gene variants, including a CREBRF variant, can have on the risk of developing type-2 diabetes and related metabolic conditions like gout, obesity, and heart disease. The aim is to assess how small differences in our genes affect body structure (height, muscle and fat mass)and how our bodies handle kai (metabolism). In the longer term the findings will contribute to improving treatment and prevention of these diseases. Participants are gifting their data through a mixed meal test and a Dexa scan of body composition.
In partnership with University of Otago since 2006, our longest ongoing research programme focuses on increasing understandings about what genes and kai (food)have to do with the gout and related metabolic conditions -
like diabetes, heart disease and kidney disease. We compare information gifted byparticipants with and without gout and various related conditions. We also regularlyshare these emergent understandings with whanau, doctors, nurses and kaiawhina toinform management and prevention of such conditions. The Health ResearchCouncil ofNew Zealand has been the major funder, with earlier support fromLottery Health, University of Otago and the Heart Foundation of New Zealand. See panui fora summary of some key findings to date.
With the University of Otago (Wellington), Whakauae Research Services (Whanganui) and five other Māori health providers, Ngāti Porou Hauora is participating in the TAKe programme funded by the Health Research Council. The aim is to understand why Māori smoking rates are bucking the country’s overall decline in smoking, and how to improve ways to reduced is proportionately high smoking rates among Māori. We hope to discover what may work better for Māori - and within that, for whānau in our rohe.
The Variome Project is led by Genomics Aotearoa from the University of Otago in collaboration with other Māori researchers and health providers, including Ngāti Porou Hauora. The purpose is to work with participants to safely assemble a collection of genetic variations present in the genomes of people with Māori ancestry (such a collection is called a ‘variome’). Assembling this ‘reference collection’ is important to ensure that genetic tests now used in a wide range of healthcare will work properly and are appropriate for people with Māori ancestry. The genetic uniqueness of Māori has not been a consideration in many tests in use today, and as a result it is unknown how useful they are. The Variome will be protected and its use regulated by a steering group drawn from communities who have contributed to the project.
With MBIE funding, Genomics Aotearoa and researchers from the University of Otago and University of Auckland are working with Ngāti Porou Hauora as the Rakeiora Pathfinder Programme’s primary care site (https://www.genomics-aotearoa.org.nz/projects/rakeiora-pathfinder-genomic-medicine). The purpose is to co-design, test and evolve ideas, processes and tikanga about how a platform can be established to support and underpin research that aims to explore how genomic information could be incorporated into healthcare across Aotearoa. The programme comprises two sub-projects: the Primary Care Project (with NPH)and the Tertiary Care Project (with the University of Auckland and Auckland’s DHBs). The key aim with NPH is to focus on the unique challenges brought by the primary care context to research on the value, utility and practicability of genomic precision medicine. These challenges include cultural, ethical, informatic and infrastructural issues that need to be addressed to establish and oversee an acceptable, successful research platform.
Ngāti Porou Hauora is participating in this study led by University of Auckland researchers in collaboration with the University of Otago, several diabetes specialists, general practitioners and other health providers. The aim is to help us choose more personalised and effective treatment for people with Type 2 diabetes in the future by identifying clinical and genetic predictors of different person’s responses to diabetes medicines - so the right medication is given to the right patient at the right time. Participants have trialled two standard diabetes medications that can now be added when other medicines are not enough to maintain good blood sugar levels, and their gifted data is being analysed.
For any Research and Evaluation queries please contact the Research Manager, Frances King.
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Krishnan M, Major T, Topliss R, Dewes O, Lennox Y, Thompson JMD, McCowan L, Zoysa J, Amp L, Dalbeth N, Harré Hindmarsh J, Rapana N, Deka R, Eng W, Weeks D, Minster R, McGarvey S, Viali S, Naseri T, Reupena MS, Wilcox P, Grattan D, Shepherd P, Shelling A, Murphy R, Merriman T. (2018) Discordant association of the CREBRF rs373863828 A allele with increased BMI and protection from type 2 diabetes in Maori and Pacific (Polynesian) people living in Aotearoa/New Zealand. Diabetologia. http://doi.org/10.1007/s00125-018-4623-1 . [Uni Otago et al/NPH].
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